Good Morning Everyone,
I'm writing this in the early morning hours of Friday, September 5th. I was released from the hospital yesterday and made it home a little before 5 pm. It was a LONG 6 days to say the least. There are no words to express our gratitude and appreciation for the encouraging words, prayers, calls, visits, and everything else that has been done for us these last few days.
I have received so many emails, I haven't begun to be able to answer them all directly. I hope you all can forgive me for that. My hands are so painful right now, typing one email is hard, answering everyone would have been impossible. On top of that, while in the hospital, my laptop died, forcing me to email from my cell phone. You can imagine, that DID NOT make answering emails any easier or less painful.
As for my health, it is improving, slowly. Even simple things are still very difficult, painful, and slow. My wife spent the better portion of the day running around town trying to get all of the things I will need to function at home and not have to go into a rehab facility. Simple things like going to the restroom, getting out of / rolling over in bed, taking a shower, etc., I no longer can take for granted. When you are any age, much less 36 and those things slip away in less than 48 hours, it is a difficult thing to endure. The progress is slow, but I think being at home is a help, psychologically if nothing else. I'm still so weak, my proximal muscles (those closest to the trunk of the body), are still a wreck. Whatever this latest episode was, it simply ate up those muscles over night, leaving them wasted, weak, and excruciatingly painful. My overall body pain is much higher as well, making even simple tasks like typing this letter so much harder.
(OH, and if that wasn't enough, I'm currently working on passing kidney stone number 23!, yep they are a hoot to pass!) :-)
We will have a hard long road to recovery, of that I am certain. There will be set backs, and the ever present threat of another episode / flare, which of course could be less or more severe. We just don't know.
On that note, the doctors were left at a loss, as always, my body showed some signs of lots of things going on, confirmed problems, but none or no combination that would point to a definitive diagnosis. The polymyositis that was initially suggested still fits all of the symptoms to a perfect T, but I didn't have enough of the diagnosis criteria to say I had it. So, we continue to work and wonder. My fibromyalgia specialist will be looking at all of my many, many test results. She will try to determine if there was something that was missed or if there is something that might be unique to fibro patients that an indicator of mine might point to. We might not know, but God does I'm sure. Wouldn't mind if He would let us in on it though! :-)
We continue to covet your prayers both for recovery and answers. We ask you to pray that we might have patience with my progress, disabilities, and frustrations. I'm sure there will be many frustrations and slow progress at times. Pray for our financial situation, without health insurance, this past stay will be in the many many thousands of dollars I'm sure. God is soveriegn and has never failed to meet our every need. Pray for my family that they will have peace in their hearts and not be overcome with worry about me and peace in their hearts when I am a bear! Between the pain and the medications I'm sure those days will come too! :-)
Thank you all once again for everything. Please continue to pray. We love you all and will use the blog to keep everyone posted, unless there is urgent need of another email update. Again, the address is www.micahmauldin.blogspot.com
May the God of heaven richly bless you all. To Him be the glory.
Micah
PS Several of you have written and asked for our address, here it is:
Micah and Carrie Mauldin
8008 Clear River Lane
Denton, TX 76210
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